Rare Disease Day Spokane 2021 - Feb 25

Thursday, February 25, 2021

The goal of Rare Disease Day Spokane is an advocacy event to draw attention to rare diseases as an important public health issue.  This is an opportunity for patients, caregivers, medical professionals, students, educators, legislators and industry representatives to come together to learn about rare diseases and what it’s like to live with or care for someone with a rare disease.


Cary O Harding, M.D. – Professor of Molecular and Medical Genetics, School of Medicine OHSU, Gene and Cell Therapies PKU

Alice McConnell - 73 Questions on SSADH Deficiency

Markie Noah - My life with SLOS: What Parents Need to Know

How can I contact the organizer with any questions?