Rare Disease Day - Feb 28 online

Tuesday, February 28, 2023

ONLINE!

The goal of Rare Disease Day Spokane is an advocacy event to draw attention to rare diseases as an important public health issue.  This is an opportunity for patients, caregivers, medical professionals, students, educators, legislators and industry representatives to come together to learn about rare diseases and what it’s like to live with or care for someone with a rare disease.

Speakers:

Cynthia Upp - Parent and Advocate for CDKL5

Calvin Smith – High School Student, Future Voice Over Actor, Metatropic Dysplasia Patient

Britt Ravnan PhD, ABMGG - Clinical Genetics Laboratory Director. Exploring the genome, one VUS at a time.

To register, follow this link.

 

Z´╗┐oom Link: https://wsu.zoom.us/j/95703540111?pwd=T09sY0ZCa0x3cHBRTFZDVWFoTXNMUT09

How can I contact the organizer with any questions?

mary.mcdirmid@gmail.com